Though we are still on this journey, these are resources which have been helpful for me.

Reading

• Grace for Each Hour: Through the Breast Cancer Journey by Mary J. Nelson
  Though a different form of cancer, the reflections of a woman whose faith held her through her journey was just what I needed at the beginning of our journey.

• Gilda's Club, http://www.gildasclub.org/
  "Cancer support for the whole family..." This is a great place for children to get support. The membership is free after an interview with a social worker.
  
• National Brain Tumor Society,  http://www.braintumor.org/GeneralMenu/
  The free Caregiver Workshop is tremendously helpful!
• A Handbook for Family Caregivers of Patients with Brain Tumors, http://www.abta.org/siteFiles/SitePages/5DAA876556591DD6CDF0A1A801484B0E.pdf
  
  • Organize your resources: Start a 3-ring binder or portfolio with 3-ring binder and pockets.
  • Keep a couple business cards of each doctor in a business card sleeve for 3-ring binders.
  • Prepare key questions for each doctor's visit and take notes of each visit.
    
  • The Medication Log at the end is a great model. I made one in Excel for easy updating.

• For Washington State residents, http://peoplesmemorial.org/ 
• For other US states, http://peoplesmemorial.org/otherLinks.cfm 
• Five Wishes, http://www.fivewishes.org/
  Five Wishes helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual.